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Honouring a Legacy Through Awareness, Education, and Community

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Honouring a Legacy Through Awareness, Education, and Community

Dave Collins is honouring his sister Carolyn’s memory by bringing the community together to raise awareness and support for ALS, shining a vital light on a devastating disease and the importance of continued education, advocacy, and compassion.
January 29, 2026 by Andrea Shane

Dave Collins continues to turn personal loss into meaningful action, honouring the memory of his sister, Carolyn, by educating the public and raising funds to support those affected by ALS (amyotrophic lateral sclerosis), also known as Lou Gehrig’s disease.

At a recent community event, Dave spoke movingly about the realities of living with ALS. While the disease may affect a relatively small number of people, its impact is profound and devastating—not only for those diagnosed, but also for their families, friends, and caregivers. His message resonated deeply with many in attendance, as countless families across our community have been touched by ALS in some way.

Shining a Light on ALS in Ottawa

ALS is a progressive neurodegenerative disease that gradually robs individuals of their ability to move, speak, and eventually breathe, while often leaving cognitive function intact. As Dave reminded everyone, awareness and understanding are critical. Education helps reduce stigma, encourages earlier support, and strengthens advocacy efforts aimed at improving care, research, and quality of life for those living with ALS.

Many in our community are familiar with the disease through personal experience, including the late former Member of Parliament Mauril Bélanger, whose public battle with ALS brought national attention to the urgent need for research, compassion, and support.

A Community That Shows Up

The strong turnout at the event was a testament to the power of community. Residents came together not only to learn, but to show solidarity with those affected by ALS and to support ongoing fundraising efforts that make vital programs and research possible. It was inspiring to see so many people take the time to participate, ask questions, and contribute to a cause that touches lives in such a profound way.

Events like this do more than raise funds—they create connection, foster empathy, and remind us that no one should face ALS alone.

Looking Ahead With Purpose and Hope

Continued education, advocacy, and support for the ALS community never go unnoticed. Thanks to the dedication of advocates like Dave Collins, conversations about ALS continue to grow, helping ensure that the disease remains visible and that those affected feel supported and heard.

Congratulations to Dave and everyone involved on a truly successful and meaningful event. Thank you for bringing our community together for such an important cause, and for reminding us of the impact that one person’s commitment can have. The compassion and support shown gives hope, and we look forward to seeing this important work continue through future events.

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